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Resources

Have you completed the self-assessment tool?

If you have already completed the self-assessment tool, use these supports and resources to research further information to implement change in your organisation.

Research
Principles for research on intellectual disability Guidelines on research procedures in  intellectual disability.
Policy

Including people with disability checklist

Checklist for planning, developing, implementing and evaluating inclusive policies, programs, procedures and strategies.

Guiding principles in supporting people with intellectual disability in health service delivery

Deliver quality health services for people with intellectual disability.

Education

Improving the experience of hospitalisation

Watch Daniel's story and his experience of hospitalisation and consider some reflective questions.
Intellectual disability training videosWatch this video series to understand the health needs of a person with intellectual disability.
Information for health professionalsUnderstand intellectual disability and how it affects a person’s health.

Lets talk disability HETI

Meet the diverse needs of people with disability who use NSW Health services (HETI course code: 67951622).

Cognitive disability and the criminal justice system HETI– Intellectual Disability
training videos (ACI)

Communicate effectively and support people with cognitive disability in or at risk of contact with the criminal justice system (HETI course code: 94996714).

Enabling person centred end of life care for people living with dementia, mental illness or intellectual disability
HETI
Explore and understand the concepts of dignity, respect and supported decision making as fundamental aspects of end of life planning and how it relates to specific clinical populations (HETI course code: 395615926).
Primary health
Intellectual disability training videos Watch this video series to understand the care needs of a person with intellectual disability.
Accessing health services

Discharges from hospital – case studies

Discuss ten discharge scenarios based on the experiences of people with an intellectual disability.

Intellectual disability training videos

Hearing from clinicians, primary health and people with ID about providing quality care

Say less, show more

A series of simple photo stories (visuals) that illustrate what will happen during a physical, dental examination or blood test

Template for easy read appointment letter
and feedback form

Send appointment reminders on this easy to read template.

Growing concerns tool

Know what to look for and to do about, your concerns for someone with intellectual disability.

Emergency transfer assessment form

Record transfer information for people with disability.

Going to hospital and handover communication

Accessing care for a patient with intellectual disability

Robert discusses what matters most to him as a person with intellectual disability.

Circle of support

Support people with intellectual disability talk about going to hospital.

Admission2Discharge Together Folder for People with a Disability – South Eastern Sydney Local Health District.

Facilitate timely transfer of relevant and current information.
School-based

Feasibility of a group-based school exercise intervention for children with intellectual disabilities Bellamy J, Broderick C, Hardy LL, et al.

Review this study demonstrating that engaging children with moderate-severe intellectual disability in school-based group exercise is feasible to assist in physical activity participation.

Schoolkit Metro-Regional Intellectual Disability Network

Support school clinics for children and young people with intellectual disability.
Specialised services

The importance of mainstream and specialised health services

Consider this summary of the important relationship between specialised intellectual disability health services and mainstream health services.

Clinical pathways and models
A model of care for adults with an intellectual
disability and co-occurring mental disorders
: Briefing paper
University of NSW
Consider the recommended principles, components and structure of a model of care.

Caring for people with gastrostomy tubes and
devices

A clinician’s guide for caring for people with gastrostomy tubes and devices from pre-insertion to ongoing care and removal.
Key principles for transition of young people from paediatric to adult healthcare Transition principles for health professionals working with young people as they underpin the practices required for successful transition.

Guidelines on the pathways to care for children and adolescents with intellectual disability and challenging behaviour and/or mental health problems

For children and adolescents with ID and challenging behaviour and/or mental health problems