Have you completed the self-assessment tool?
If you have already completed the self-assessment tool, here are the links to next steps for the specific supports and resources for each of the key actions. Please use these to research further information to implement change in your organisation.
1. There is a local champion(s)/mentor(s)/key contact for improved healthcare for people with ID within the LHD.
Context report and toolkit for health services for people with intellectual disability, 2015 – Section 16 page 57 speaks about the role of the specialised nurse and illustrates this with a case study
Daniel’s story – A video in which a carer and medical professional speak about improving access through local champions
Discharge case studies – A summary of findings including how a key contact was important
Clinical developmental coordination – shows the importance of a key coordinator role
ACI ID training videos where health staff discuss their roles
2. A senior staff member of the LHD has responsibility for leadership in coordinating disability issues.
LHD Disability Inclusion Action Plan– an example from a LHD
LHD NDIS Transition Manager – an example of a position description
3. All staff (including clerical and clinical staff) are provided with disability awareness training including a values and attitudes component.
4. People with ID are identified in LHD records, including whether they are participants in the NDIS.
5. Policies and procedures are reviewed for their impact on inclusiveness of people with ID.
Checklist for including people with disability – Checklist for planning, developing, implementing and evaluating inclusive policies, programs, procedures and strategies
Real people, real lives – Stories about people with ID accessing NSW health services
Working with people with ID in healthcare settings – a fact sheet from the Centre for Developmental Disability Health Victoria
Capacity toolkit from the NSW Attorney General’s Department about a person’s capacity to make their own decisions
Rights and responsibilities information for people with ID – developed by Illawarra Shoalhaven LHDMaking mental health policy inclusive of people with intellectual disability intellectual disability: A summary for service providers (UNSW)
6. People with ID and their carers are involved in health care planning and setting health goals in respect of their own health care.
Improving the experience of hospitalisation for people with intellectual disability (Daniel’s Story) – a video discussing what matters most from the viewpoint of a parent
Accessing care for a patient with intellectual disability – a video in which Robert discusses what matters most to him as a person with ID
Orientation to caring for a patient with intellectual disability – a video for health staff
Patient experience and consumer engagement (PEACE) – Resources about using the co-design methodology in service design
Compliments and complaints – an accessible resource developed by Illawarra Shoalhaven LHD
Being a healthy woman – a resource for women with ID about reproductive and sexual health
Easy read health appointment letter – an example of an adapted appointment letter
Top5 – Toolkit – a resource to assist LHDs meet the needs of people receiving health services
7. There is a specific LHD strategy and plan for MH/ID which includes the involvement of Justice Health and Ambulance Services.
Memorandum of understanding and guidelines between Ageing, Disability and Home Care, Department of Human Services NSW and NSW Health in the provision of services to people with an intellectual disability and a mental illness
8. The LHD has its own policies and procedures for the implementation of the hospitalisation policy directive.
9. People with ID who have chronic disease are supported to access chronic disease management programs, out-of-hospital programs and preventative health programs.
Say less show more visuals – Resources for training and using visuals inclinical encounters
Medicare health assessments resource kit – Fact sheets and proformas
Dying to talk – research on speaking with people with ID about end-of-life planning
Feasibility of a group-based school exercise intervention for children with intellectual disabilities – Journal of Science and Medicine in Sport Easy read health fact sheets
NSW Ombudsman Expert Forum - Rights Project for People with Disability resources
Preventing deaths of people with disabilities in care – Information for staff of disability services – from the NSW Ombudsman
10. Local service mapping and liaison has been undertaken in the LHD to identify all NGO disability services and Ability Linkers and NDIA outlets.
Mapping of specialised health services for people with ID in NSW (now available with password on request from LHD or Tracey.firstname.lastname@example.org)
Co-design toolkit – a resource to support designing health services in collaboration with service users and providers
Schoolkit – a resource to support school clinics for children and young people with ID
Primary health networks – contact details, resources and activities according to area
NDIS legislation – information and assistance
11. Linkages have been established between the LHD and specialised disability health teams. There is consultation regarding developing protocols about hospital admissions, discharges and ED admissions for people with ID.
Partnering with disability services to develop a disability action plan – a presentation by Illawarra Shoaohaven LHD
Assessing health needs of children with intellectual disabilities: A formative evaluation of a pilot service – from Research and Practice in Intellectual and Developmental Disabilities
Diagnostic assessment services – a listing
Guidelines on sedation and/or analgesia for diagnostic and interventional medical, dental or surgical procedures – guidance for when the patient has ID
Passport to Health – a resource for use in health service encounters for people with ID
Evaluation report on the developmental psychiatry clinic – from the Centre for Developmental Studies