Recognition for Australian resources for young people in chronic pain
A new website developed by the Agency for Clinical Innovation (ACI) that offers support to young people in chronic pain will be recognised by national and international speakers at the 34th Annual Scientific Meeting of the Australian Pain Society (APS) in Hobart, Tasmania.
The Australia-first website launched last month by the NSW Minister for Health, is based on the latest scientific knowledge about the management of pain, and includes innovative PainByte episodes for young people living with chronic pain.
Invited speaker Professor Christine Chambers from the Canadian Centre for Paediatric Pain Research is convening a dedicated session on pain in childhood at the APS conference.
“Chronic pain is a significant problem for children and young people. Just at a time when young people need to gain confidence and build independence, their life is interrupted by chronic pain,” Professor Chambers said.
“Evidence based resources like PainBytes bring to life all the information a young person, their family and friends need to understand and better manage pain, in a way that is engaging, inspiring and supportive,” said Professor Chambers.
“The experience shared on the website and self-management strategies offered are equally valuable to young people overseas and can be life-changing,” Professor Chambers said.
Dr Meg Goodison-Farnsworth from Sydney Children’s Hospital Randwick is chairing a session at the conference on the innovative delivery of paediatric chronic pain management programs.
“Every young person’s experience of pain is different. Children and young people often find it difficult to explain how they feel and can feel isolated and alone. Sometimes they are not believed, especially when there is no obvious medical diagnosis or injury,” said Dr Goodison-Farnsworth.
“PainBytes provides us with a powerful new user-friendly resource to offer young people and their families. The website can break down feelings of isolation and build a greater understanding about chronic pain in the community. I’m confident it will help us change outcomes in chronic pain,” she said.
Visitors to the website can access:
- Interactive learning and self-management modules for adolescents with chronic pain
- Inspirational videos of people young and old sharing their experience of how adopting an evidence based approach to pain made a real difference to their daily lives
- A health professional toolkit for General Practitioners and healthcare professionals working in the community
- Complementary tools and resources for patients including printable factsheets
Hunt L. Pain Bytes website helps children with chronic pain share stories, learn strategies for pain management. ABC News [Internet]. 2014 Apr 14
ABC. Kids in Pain. Behind the News. [Internet]. 2014 Apr 29
Media contact: Maeve Eikli, P: +61 2 9464 4607, M: 0400 431 199, E: firstname.lastname@example.org
Published: 14 April 2014
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